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SFY Survey 2

SPEAK FOR YOURSELF 

NEW SURVEY IS NOW OPEN!!!

Follow this link to take new survey and learn more about disability and health-related research. 

UCP, in partnership with the Patient-Centered Outcomes Research Institute (PCORI), is excited to launch Speak for Yourself.  Speak for Yourself is a movement to build a network of individuals with disabilities who are trained and empowered to become directly involved in health-related scientific research that addresses the health questions that matter most to people with disabilities and their families.

Relevant and well-informed patient-centered clinical research is essential to advancing healthcare access, quality, and choice for individuals with disabilities. A patient-centered approach to research that encourages individuals with disabilities to provide input on the gaps in evidence, best practices, and direction of disability-focused research is central to the success of such research.

Individuals with disabilities have expressed the desire to be a part of such a movement to improve their lives, yet to-date, only a small segment have been able to become meaningfully involved. Too often those with the potential to be most impacted by disability-focused research aren’t aware of what research is occurring or how to get involved. Members of the research community have also expressed the desire for more individuals with disabilities to become centrally involved with their work, and seek better relationships with networks of knowledgeable and engaged disability-focused research participants.

This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award.

UCP Heartland Announces Brenda Wrench as New President & CEO

Brenda Wrench

(St. Louis, July 14, 2016)  After a national search, the Board of Directors of UCP Heartland has chosen Brenda J. Wrench as its new President and Chief Executive Officer. She succeeds Richard Forkosh, who has retired effective July 1, 2016.

UCP Heartland’s mission is to provide the highest quality of programs and services to advance the independence, productivity and full citizenship of individuals with disabilities in Central and Eastern Missouri. Serving more than 5,000 individuals with disabilities throughout our region, UCP Heartland is a United Way of Greater St. Louis member agency and is accredited by the Better Business Bureau and the Commission on Accreditation of Rehabilitation Facilities (CARF).

Wrench, who joined UCP Heartland in October 2014, as its Chief Operating Officer, brings to her new leadership position more than 20 years of proven expertise in leading social service agencies. She came to the organization after 20 years with the Urban League of Metropolitan St. Louis, where she served as both Chief Financial Officer and Chief Operating Officer.
During her tenure at the Urban League, the agency grew tenfold and attained national recognition.

“I’m looking forward to working with the Board of Directors, our 200 UCP Heartland dedicated staff and the thousands of families we serve,” said Wrench. “I see my job as ensuring that we build on our strengths to provide the highest level of service, continuously advocating for adults and children with disabilities to live life without limits.”

A seasoned leader with proven skills in organizational development, program implementation and fiscal oversight, Wrench holds a bachelor’s degree in psychology and an MBA from Washington University in St. Louis. She has also taught masters level classes in nonprofit leadership at Webster University for the past 5 years.

Founded in 1953, United Cerebral Palsy Heartland (UCP) is a nonprofit, charitable organization dedicated to supporting individuals with cerebral palsy and other disabilities including Down Syndrome, Autism Spectrum Disorder, physical disabilities and traumatic brain injury (TBI). For more information, visit www.ucpheartland.org

 Life Without limits

For more than 60 years, UCP Heartland has helped to enhance the quality of life of people with cerebral palsy and other disabilities, their families, and their communities. We believe that individuals with even the most challenging disabilities have the right to quality education and transition services, integrated employment opportunities with competitive wages and career opportunities. We also promote full inclusion in community life by providing resource and referral, advocacy, and community integration services. Please explore our website for more news, and events, and to find more information on services we provide. A link is provided below if your would like to make a donation online.

You can help us continue to promote “life without limits” for people with disabilities.  Click here to let us know if you are interested in getting involved with UCP Heartland as a volunteer, advocate, donor, or sponsor of an upcoming event. Please include a daytime phone number and email with your inquiry.

Thank you!!

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